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On behalf of millions of patients and consumers we represent across the United States who face serious and chronic health conditions, our organizations urge Congress to oppose cuts that will terminate ...
When I moved away for college, I was determined to prove that I could manage my CF all by myself. But I was thrown for a loop when I was unexpectedly diagnosed with CF-related diabetes.
Dear Speaker Johnson, Chair Aderholt, Leader Jeffries and Ranking Member DeLauro, We, the undersigned organizations, write to express our deep concern for our nation’s biomedical research institutions ...
Following Joe’s passing, longstanding volunteers Kate O’Donnell and Amy Barry stepped forward to carry the torch as Co-Chairs ...
Growing up, I participated in Great Strides in honor of my cousin who has CF. Today, I stride with even more purpose — now for my son, who was diagnosed with CF.
I was diagnosed at 2 years old with cystic fibrosis. My pediatrician initially thought I had asthma when I was having shortness of breath and wheezing with heavy exercise. My great grandma ultimately ...
As I sat in the genetic counselor’s office just one month into being a new mom, I found myself wishing I would’ve paid closer attention to the biology unit on Punnett squares in high school. “OK, so I ...
The Foundation’s funding will support Owlstone Medical’s development of a breath test to help doctors diagnose and monitor Pseudomonas aeruginosa infections in people with cystic fibrosis. The Cystic ...
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