News

Imagine eating a meal, but never feeling satisfied. This is how it feels to sufferers of the genetic condition Prader Willi Syndrome (PWS), where in extreme cases, the sufferer can quite literally ...
A mum whose daughter is living with the same condition as Harvey Price, Prader-Willi syndrome, has opened up about the emotional toll of not knowing how long her daughter will survive Comments ...
The Prader-Willi Syndrome Association UK (PWSA UK) provides information and support for people whose lives are affected by the syndrome. You can call the PWSA UK helpline on 01332 365676.
Lon don's Tower 42, Cardiff Castle, The Mersey Gateway Bridge and Green's Windmill in Nottingham were among the buildings to 'Glow Orange’ to highlight Prader-Willi Syndrome (PWS).
PWSA UK is a charity supporting individuals with Prader-Willi Syndrome (PWS), their families, and carers. For over 40 years, we’ve provided help through our helpline, advocacy, resources, peer ...
The move marked the end of Prader-Willi Awareness month Jon Rogers, News reporter Published: 10:43, 1 Jun 2024 Updated: 10:44, 1 Jun 2024 ...
This year, in honour of the UK lighting up for Prader-Willi Syndrome (PWS), the entire Move it May community has covered over 3.6 million steps, equivalent to walking between each orange landmark ...
Prader-Willi Syndrome affects approximately 2,000 people in the UK and is a rare complex genetic disorder that impacts both males and females from birth and throughout their lives, causing an ...
Staff and children at St James' Daisy Hill CE Primary School Nursery dressed in orange, which is the official colour for Prader-Willi Syndrome (PWS). PWS causes a wide range of physical symptoms ...
Soleno Therapeutics' Vykat XR has become the first FDA-approved treatment for Prader-Willi syndrome (PWS), a rare genetic disorder that causes excessive appetite and obesity. Vykat XR (diazoxide ...