Hannah said: "Trying to fix Zander's broken heart, broke our heart into a million pieces because Zander's heart surgery went ...

The Danish company reported that Sogroya enhanced the annual growth rate in pre-pubertal children born small for gestational age (SGA), those with Noonan syndrome (NS), or those with idiopathic ...

Dad Ian Legg, co-founder of the Noonan Syndrome Association, says his son lived a fulfilling life. "What he achieved in 33 years, most of us never achieve in 70," he said.

He added: "To get three Noonan's Syndrome children together is quite remarkable. "It shows how rare the disorder is that we have to travel across the world. We are honoured we can make this happen.