Individuals with Coffin-Siris syndrome typically have distinctive facial features and may experience developmental delays. Other symptoms include feeding difficulties and issues with vision and ...

That’s why she wants to share her story on how she was diagnosed at a young age with a rare genetic disorder called Coffin Siris Syndrome or CSS. Doctors say the characteristics and defects of ...

She typed “Coffin-Siris syndrome” into Facebook’s search bar, a term that had eluded her since the birth of her daughter nearly eight years ago. Moments earlier, her youngest child ...