Neurofibromatosis is a group of rare genetic disorders that cause benign tumors to form on nerve tissue. Tumors in this disorder are usually noncancerous (benign), but can sometimes become ...

A rare genetic disorder known as Neurofibromatosis type one, or NF1, affects about one in 2,500 people in the U.S.

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Penny Doerge lived every day with joy, humor and bravery. She was diagnosed at a young age with neurofibromatosis, a condition that can cause tumors, and in her case, led to terminal brain cancer.

Pearson was diagnosed with neurofibromatosis, a rare genetic condition that leaves his skin covered in thousands of thick, painful tumors. Neurofibromatosis 1 affects about 100,000 people ...

"When one tumor is removed, it's like another pops up," says Michele Holbrook, who is raising awareness of neurofibromatosis for the Children's Tumor Foundation Craig Warga for Children's Tumor ...

After a long series of medical exams and tests, she was diagnosed five years later with a type of neurofibromatosis called schwannomatosis, a rare genetic condition that causes usually benign ...

Gomekli (mirdametinib) is the first treatment that is FDA approved for both adults and children with neurofibromatosis type 1 (NF1) who have plexiform neurofibromas (PN). Selumetinib, a drug that ...

JUST THREE DAYS LATER MEGAN WAS DIAGNOSED WITH NEUROFIBROMATOSIS OR NF A GENETIC DISORDER THAT CAUSES TUMORS TO FORM ON NERVE TISSUES LIKE THE BRAIN, THE SPINAL CORD, OR ANY NERVE THROUGHOUT THE BODY.

The marks can be a sign of Neurofibromatosis (NF) type 1. Doctors at the Children's Hospital of Philadelphia confirmed that's what Mila had, which led to several follow-up appointments.